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Survivor: "1. To remain alive or in existence. 2. To carry on despite hardships or trauma; persevere!"
"The real voyage of discovery is not in seeking new lands but in seeing with new eyes." - Marcel Proust
We are all survivors!
Below are two stories of thousands that can be told. Jan (Mother) and Anne (friend) connection began through Lynn. Now they share the common thread of breast cancer, and living their lives to the fullest with a positive attitude with help from family and friends.
To laugh is to risk appearing a fool.
To weep is to risk appearing sentimental.
To reach out for another is to risk involvement.
To expose feelings is to risk rejection.
To place your dreams before the crowd is to risk ridicule.
To love is to risk not being loved in return.
To go forward in the face of overwhelming odds is to risk failure.
But risks must be taken because the greatest hazard in life is to risk nothing.
The person who risks nothing does nothing, has nothing, is nothing.
He may avoid suffering and sorrow, but he cannot learn, feel, change, grow or love.
Chained by his certitudes, he is a slave.
He has forfeited his freedom.
Only a person who takes risks is free....Dr. Leo Buscaglia
Scroll down to find Jan and Anne's survivor stories
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Jan and her eight grandchildren (1996)
~ Jan’s Story ~
Twenty-four years ago, at the ripe old age of 45, I was diagnosed with breast cancer in my left breast. I chose to have a mastectomy—as I believed it gave me the best chance of living. After the surgery I found that the cancer was in my lymph nodes. I underwent six months of chemotherapy. The following year a precancerous tumor was found in my other breast. I was excited about reconstruction surgery and we decided it was best to do a second mastectomy and have both breasts reconstructed at that time.
I adored my oncologist, Dr. Yu, and each time I saw him, I would ask him if I could now say, “I HAD cancer”. Each time he would say “not yet”. As the years, tests and doctor visits went by, I was finally able to say and believe that I am a survivor! I can say I HAD cancer but I don't have it anymore.
I have a full life and am very actively involved in the lives of my four daughters and their families. I have eight grandchildren who range in age from 2 to 24.
I have so much to be grateful for. Not the least of which is the medical care that has allowed me these 25 years, but also the fact that research is ongoing. I am the mother of four daughters and three grandaughters. Who knows how many great-granddaughters I'll have! I hope, pray, and believe there will be a cure in my lifetime or in my daughter's lifetimes.
I believe that the investment in this research is the best insurance for them to either avoid breast cancer, or to be a survivor, should they find themselves in my shoes.
Because of breast cancer research and treatment I have survived 25 years to celebrate many big and small occasions in my family's life. This was a big one- My grandaughter Shannon graduated from Cal Poly at the age of 20!
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~ Anne’s Story ~
In early 2003, my dear friend Anne, found a lump in her breast. She underwent a double mastectomy and six rounds of chemotherapy. The day before her surgery she emailed me to say she was going for one last bike ride. She wanted to “feel the wind on her face.” Her cancer returned a year and a half later in her hip and spine. Anne and her husband, Chris, have three boys Alex, 6, Kyle, 9, and Colin, 14.
Not so many years ago, Anne would have been sent home to get her affairs in order. Thanks to breast cancer research and treatment with the new drug Herceptin, Anne’s cancer isn’t growing and her pain is gone. I believe that somewhere a breast cancer researcher is working on a treatment that will cure Anne. She leads a relatively normal life—or at least as normal as one woman can, living with four regular guys. She is my miracle friend. I never ride my bike without saying a thank you prayer for the privilege of feeling the wind on my face.
In writing to support Lynn’s efforts to raise money through the Janus Charity Challenge in connection with the 2005 Ironman Triathalon, here is Anne’s story in her own words:
I never thought that “my story” would include breast cancer. As an active and healthy woman, this was furthest from my mind! But my life thread now weaves in visits to the Sutter Cancer Center for weekly Herceptin treatments. At times my diagnosis seems surreal, and it scares me to the very core, but it also gives me a renewed strength and sense of self.
My story “ends” with the conviction to keep the breast cancer research alive so every dollar, every minute, every discovery brings us closer to a cure. The reality of my situation is that without the current research breakthroughs that have happened in the last 5 years, I would not be doing as well as I am today. Breast cancer research brings daily miracles and hope to survivors, family members, and friends, and I am hoping, with your support, the miracles never end!
The middle of my story sustains all my days because my blessings are infinite. I thank God for each day and every yesterday, and have faith that love, strength, and medical discoveries will make a better tomorrow. Each day I am a Survivor!
Add to the mix my husband, Chris! He is an amazing man, standing by me, for me, and ahead of me throughout all of this, keeping my sense of humor and hope alive. His dedication and love are endless. When I was first diagnosed, I told Chris that I was determined to stick around to ensure he raised our children properly :-). Even though I know he would do a great job, I want to be around for all the excitement! My three sons still treat me as if nothing is wrong, and remind me that life is to be lived each day! We are surrounded by devoted and supportive parents, siblings and their spouses, nieces, nephews, and extended family members who bolster us, and surround us with boundless love. With our families out-of-town, our friends have humbled us in their out pouring of prayers, support, love, and kindness.
My oncologist, Dr. Sayegh, and all in the medical community who have assisted in my diagnosis and care, have my endless gratitude for their wisdom, expertise and compassion.
This story began when I discovered a lump in my left breast during a self-exam in November ’02. The battery of tests and biopsies determined that the left breast needed to be removed, and I had decided on a prophylactic mastectomy for the right breast. I didn’t want to live “waiting for the other shoe to drop”. And as a Libra, I like things balanced! I finished chemotherapy in August ’03 and chose to skip the reconstruction process.
In July ’04, I experienced extreme back pain and a round of x-rays showed nothing. The pain returned a few months later, and more scans showed metastasized cancer in my spine and left hip. This time around, I was without the same energy to form my attack again. Lynn helped to research & arrange 2nd, 3rd opinions, getting my films, slides, and took me to the next round of tests and scans. And through her optimism, I gained the energy to forge ahead. She, along with many others, is living proof angels exist on earth!
Oct' 2006 - I currently receive weekly treatments of herceptin, montly treatment of zometa, and am on aromasin. I get a PET scan every 3-4 months to track the cancer activity level. A chemotherapy drug is added to the mix when my cancer activity begins to increase. My cancer is treated as a chronic disease and my treatment regimen is geared to give me the best quality of life, as if I am running a marathon.
I am constantly doing research on the web, eat as much organic foods possbile, have eliminated alcohol, sweets & caffene, take 4 - 2oz wheat grass shots (from Jamba Juice) a week, and have begun a supplemental "CAM" regimen. CAM - Complimentary and Alternative Medicine. Hopefully this will add to the length of my marathon!
July, 2007 After almost a year with no chemo treatments and just hormone therapy, I just started Tykerb (daily)/Xeloda (3200 mg/day; 2 wks on/1 wk off). The drugs come in tablet form, and so there are no trips to the Cancer Center for awhile other than my oncologist appts. My bone mets are stable..yea! but the node in my chest is acting up and there is another small spot showing on the PET scan. B/c I have wheezing, coughing, and tightness in chest along with PET results, we are changing treatment with the hope the chest node goes away! September, 2007 The PET/CT scan showed that my chest node was gone!!! So that means the xeloda/tykerb regimen is working! Experincing pain in lower back, so am doing 20 rounds of radiation. Side effects of xeloda/tykerb are becoming less as we try to get the correct dosage and timing. December 2007 Awaiting results from most recent PET/CT scan, but am feeling pretty good. The xeloda/tykerb regimen is working (one week on and one week off for xeloda of 2000mg, and 1000mg daily for tykerb). Had a month of radiation in my spine between Oct and Nov. This PET/CT will show the results of that. Looking forward to another year!
January 2008 The results from my PET/CT scan are in! I am NED...nothing showed up. First time in 5 years! It is a great anniversary present since I was diagnosed 5 years ago this month. I hope that I can keep it up. Will continue with same treatment for forseeable future.
May 2008 My April PET/CT showed that the spine tumor was acting up again..the little devil! So of of tykerb & xeloda, back on herceptin and this time with navelbine. Weekly visits to the cancer center again, a few deep breathes and ready to go.
Thoughts as a Survivor
As a survivor, and from my experience, I offer the following:
I firmly believe in this information laden day and age, that we need to be a strong advocate for ourselves, by knowing our bodies, trusting our instincts, and learning how to be comfortable in pursuing answers. -First and foremost is finding doctors with whom you feel comfortable discussing your cancer and specific needs and whose knowledge, judgment and expertise you trust. -Secondly is to ask as many questions as you need until you are comfortable in how your treatment is progressing. This may mean getting a second opinion regarding your diagnosis and/or treatment. -Thirdly, after initial treatment has ended ask your doctor of the viability of getting a baseline PET/CT or bone scan. -Fourthly, after completing treatment, if you experience a constant pain, or a pain which increases in magnitude, see your doctor immediately. -Lastly, once diagnosed you join a sisterhood of thousands of women and unfortunately, you will never have the bliss of living your life without the question of cancer. You will need to be aware of your body, you will question what used to be routine aches and pains. However, you can make your life more meaningful, more positive by finding out what is important to you, and live your life accordingly!
Faith is bird that feels the light when the dawn is still dark.
Invasive Ducutal Carcinoma
5 tumors left breast largest 2+cm
Bilateral Mastectomy
No reconstruction
Her2/neu +++
ER+/PR+
Oophorectomy (ovaries out) 10/04
Radiation Nov-Dec '05 left hip
Radiation Oct-Nov '07 L5 pedicle in spine
Treatments since '03: 6 rounds A/C, taxmoifen, zolodex, faslodex, armidex, aromasin, 9 months taxotere, 2-1/2 years herceptin, zometa, xeloda, tykerb, herceptin & navelbine
Check out my one of my hubpages I have Breast Cancer...It doesn't have me!
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Race for the Cure 2003
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Anne and Alex (3)
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